Miracle… Amazing… Blessing
These three words describe our experience with the Conductive Learning Center of Greater Cincinnati.
Our story begins in San Antonio, Texas with the birth of our twin daughters, Chloe and Katie in October 2008. Life was wonderful, we always wanted children and were very blessed to have two gorgeous girls. I started suspecting something was wrong when the girls were 2-3 months old. Chloe was not doing things that Katie was. After struggling to be heard and seeing several doctors, someone finally listened. April 2009, Chloe was diagnosed with an abnormal EEG, she was not having seizures, she just had an abnormal EEG. Her MRI was normal and all other tests were coming back normal. June 2009, I was sitting in the doctor’s office with Chloe while Mark & Katie were at home packing to move to Ohio. The doctor brought in a social worker and they confirmed what I had suspected for months…” your daughter is severely developmentally delayed”. After moving to Ohio in July 2009, we were finally given a diagnosis. Chloe has a 5q14.3 microdeletion. She is missing 3 genes on her 5th chromosome. Not much is known about this diagnosis as the testing was only 2 and ½ years old when it was done on Chloe. The only information given to us was that 7 other children worldwide had similar deletions, but no one has an exact deletion as Chloe. The genetic syndrome, as it is being called, is associated with developmental delays, low muscle tone, and seizures. On December 23, 2009 Chloe was diagnosed with myoclonic jerks, a form of seizures.
Once settled in Ohio, Chloe started Physical Therapy, Occupational Therapy and Speech Therapy at Dayton Children’s Medical Center. We were excited about the information given to us and the options given to us to continue at home. But, I felt I was not doing enough. I felt 30 minutes of each therapy a week was not enough. When starting, Chloe barely made it 15 minutes into the session before tiring and not wanting to finish her session. Soon, Chloe successfully completed a full 30-minute session and at times seemed she could have worked longer if only given the chance. I prayed every day that we were able to do everything possible to help our girls have as normal of childhoods and lives as possible.
Then a miracle happened. While on a trip to the Cincinnati Children’s Museum, I picked up a parenting magazine. There was an advertisement for the Conductive Learning Center of Greater Cincinnati. We discussed it and thought about it but felt there was too much unknown to venture into something new. A few weeks later, I saw a story on the news. It was a miracle that I had the news on rather than children’s programming and a miracle that I even saw the story about the Snooty Fox Bus Tours to benefit the Conductive Learning Center of Greater Cincinnati. We thought a little more but were still hesitant. Then, the 3rd time was the charm. While visiting my aunt and uncle in Florence, Kentucky, my aunt showed me a newspaper article highlighting and explaining about the Conductive Learning Center of Greater Cincinnati. God was definitely answering our prayers. Three times that Conductive Learning Center of Greater was brought to the forefront.
In the meantime, we were still struggling to control Chloe’s seizures. The medications were sedating her and not controlling her seizures. Chloe was struggling in Physical Therapy and Occupational Therapy because she was having seizures while trying to do tasks, making it even more difficult for her to learn how to do things.
Chloe went for her evaluation in August 2010 and it was decided that she and I would start the “Mommy and Me” class in October 2010. We struggled with wanting the best for Chloe and ensuring that we could optimize her learning abilities. Chloe’s neurologist mentioned the Ketogenic Diet as a means to hopefully control her seizures. The medications that had been tried were not working and she was suffering side effects. After researching the Ketogenic Diet, Chloe began it in September 2010.
Her seizures, now under better control, we felt she had the opportunity to enter into Conductive Learning more alert, not medicated and seemingly easier to comprehend things. After just one 5 week session at the Conductive Learning Center, our families were able to see improvements in Chloe. She was more alert, had better muscle tone and was generally stronger than we had ever seen her.
When Chloe began at Conductive Learning Center of Greater Cincinnati, she stood with assistance for a few seconds, refused to even try to sit on the potty chair by arching her back and stiffening her body, would hold objects placed in her hands for only a few seconds. The amazing work done at Conductive Learning Center of Greater Cincinnati now has Chloe sitting on the potty chair, standing and holding onto objects for support, sitting in a chair at a table, holding her bottle/sippy cup with minimal assistance and interacting with us and her sister Katie, just to name a few skills.
Our families believe Chloe is truly thriving and doing better than we could have imagined. The progress she has made in just 3 short months has been monumental. It is a blessing that we found the Conductive Learning Center of Greater Cincinnati and we feel we are doing the very best for Chloe to succeed in life.
Christmas 2010, I was helping Chloe stand in front of the Christmas tree as Mark was decorating and Katie came up, gave Chloe a hug and Chloe stood there with her sister holding each other’s hand. This is a seemingly small task but a monumental occasion for our family. The best Christmas present ever was Christmas Eve when Chloe, with support from Mark, took steps on her own toward the Christmas tree and Katie looked at everyone and said in her two-year-old voice, “Mewy Chwistmas”.
We wish to send a special thank you to Donna and Dennis Speigel for opening the Conductive Learning Center of Greater Cincinnati. Thank you to all that support the Conductive Learning Center of Greater Cincinnati. Because of you, Chloe’s has a better chance of overcoming her disabilities and improving her quality of life.
Location: 325 W 19th St. Covington KY 41014
School Hours: 9am – 2:30pm